I have only just found this out after 9 years of waiting........
unfortunately it is rarer than Cri Du Chat Syndrome and doesn't even have
a name, but I am so pleased to have the full picture of his genetic makeup
and I am trying to find out as much as I can about it. If anyone can help
me I would love to hear from you.
Please email me
I have found this link so far, and still looking.......
European 11q network
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